Major thumbs up to Jim Kelly!!!

[Dr. Lecter]

He has used his name to get legislation passed to save lives.


:bf1:

WASHINGTON — Former Buffalo Bills quarterback Jim Kelly was praised Tuesday as a leader who transformed a tragedy — the death of his son, Hunter — into a national movement to medically screen all newly born children.

Sens. Hillary Rodham Clinton and Chris Dodd, and Rep. Thomas M. Reynolds joined Kelly and his wife, Jill, to mark Tuesday’s House passage of legislation Kelly has sought for almost a decade.

The legislation creates national standards for screening newborns, provides $15 million a year for information programs and $5 million to evaluate the screening programs, and creates a national advisory committee on ailments that newborns and children can inherit from their parents.

“Through this legislation,” Kelly said, “we’re going to change the lives of thousands of kids.”

Hunter Kelly died in 2005, at age 8, from Krabbe’s disease, a progressive nervous system disorder. Jim Kelly said he did not find out his son had the illness until he was four months old. The Kellys sought a medical examination after their son “cried 22 hours out of every 24.”

Had Hunter been diagnosed for the ailment at birth, his life might have been saved.

Clinton, D-N.Y., said the bill, which has passed the Senate, advances work begun in 1957 by the late Dr. Robert Guthrie of Buffalo, who was a faculty member of the University of Buffalo Medical School.

http://www.buffalonews.com/home/story/318818.html

[yordad]

"Had Hunter been diagnosed for the ailment at birth, his life might have been saved."

How?

I am sure it is true, but I am curious. Anyway, that is pretty awesome.

[Mitchy moo]

My god it took 10 years for this to become a given?? That's some real dedication by Jimbo and shows what a class act he is. God bless him and his family during all the tough times and I'll pray for his future ownership of the Bills as well.

:respect:

[hydro]

"Had Hunter been diagnosed for the ailment at birth, his life might have been saved."

How?

I am sure it is true, but I am curious. Anyway, that is pretty awesome.

Is there any treatment?
<disorder_treatment> There is no cure for Krabbé disease. Results of a very small clinical trial of patients with infantile Krabbé disease found that children who received umbilical cord blood stem cells from unrelated donors prior to symptom onset developed with little neurological impairment. Results also showed that disease progression stabilized faster in patients who receive cord blood compared to those who receive adult bone marrow. Bone marrow transplantation has been shown to benefit mild cases early in the course of the disease. Generally, treatment for the disorder is symptomatic and supportive. Physical therapy may help maintain or increase muscle tone and circulation.
</disorder_treatment>
http://www.ninds.nih.gov/disorders/krabbe/krabbe.htm

[yordad]

Is there any treatment?
<DISORDER_TREATMENT>There is no cure for Krabbé disease. Results of a very small clinical trial of patients with infantile Krabbé disease found that children who received umbilical cord blood stem cells from unrelated donors prior to symptom onset developed with little neurological impairment. Results also showed that disease progression stabilized faster in patients who receive cord blood compared to those who receive adult bone marrow. Bone marrow transplantation has been shown to benefit mild cases early in the course of the disease. Generally, treatment for the disorder is symptomatic and supportive. Physical therapy may help maintain or increase muscle tone and circulation.
</DISORDER_TREATMENT>
http://www.ninds.nih.gov/disorders/krabbe/krabbe.htm
"received umbilical cord blood stem cells", is that prebirth?

[hydro]

"received umbilical cord blood stem cells", is that prebirth?

I would think so but the site doesn't say.

[Philagape]

"received umbilical cord blood stem cells", is that prebirth?

No, I think that means receiving a stem cell transplant where the stem cells come from umbilical cords. Notice it says unrelated donors, not the mother.

[Ebenezer]

"received umbilical cord blood stem cells", is that prebirth?
the cord blood cells come from other donors. they are isolated from the umbillical cord and enriched for cells of interest. then they are introduced to the recipient much like a bone marrow transplant. there is no harm to the "donating" baby - most umbillical cords are just thrown away anyway.

the cells are giving to a recipient at some point after birth. don't forget - unless there is reason to do the screening many babies are never tested until they develop physical symptoms. this testing would allow for testing to be done soon after birth. once the results are obtained doctors can then plan a course of treatment. donation would still occur weeks if not months after the afflicted child was born.

[The last buffalo fan]

:bf1: :salute: :bow: :up:

[shelby]

:up::bf1::10:

[Jan Reimers]

Jim Kelly has developed into a good man, rather than just a good football player.

He has really done something positive with the the terrible adversity in his life.

[TheGhostofJimKelly]

:up:

[Pride]

:bf1:

[Michael82]

Great job, Jim! :bf1:



Now how long until he decides to become a Senator or something? I see him as the next Jack Kemp....

[YardRat]

:beers:

[Dujek]

:up:

Good job Jim.

There aren't many better football players to use as role models for kids than Jim kelly.

[blackonyx89]

He has used his name to get legislation passed to save lives.


:bf1:

WASHINGTON — Former Buffalo Bills quarterback Jim Kelly was praised Tuesday as a leader who transformed a tragedy — the death of his son, Hunter — into a national movement to medically screen all newly born children.

Sens. Hillary Rodham Clinton and Chris Dodd, and Rep. Thomas M. Reynolds joined Kelly and his wife, Jill, to mark Tuesday’s House passage of legislation Kelly has sought for almost a decade.

The legislation creates national standards for screening newborns, provides $15 million a year for information programs and $5 million to evaluate the screening programs, and creates a national advisory committee on ailments that newborns and children can inherit from their parents.

“Through this legislation,” Kelly said, “we’re going to change the lives of thousands of kids.”

Hunter Kelly died in 2005, at age 8, from Krabbe’s disease, a progressive nervous system disorder. Jim Kelly said he did not find out his son had the illness until he was four months old. The Kellys sought a medical examination after their son “cried 22 hours out of every 24.”

Had Hunter been diagnosed for the ailment at birth, his life might have been saved.

Clinton, D-N.Y., said the bill, which has passed the Senate, advances work begun in 1957 by the late Dr. Robert Guthrie of Buffalo, who was a faculty member of the University of Buffalo Medical School.

http://www.buffalonews.com/home/story/318818.html

Jim has done it again, he lead his "team" to another victory, and this one
will benefit families everywhere!!!

:respect: